| As if growing pains were not enough, there is such a | | | | and muscle mass which results from lost appetite and |
| thing known as systemic-onset juvenile rheumatoid | | | | limited body movement. On the other hand, prolonged |
| arthritis which afflicts both girls and boys as they | | | | medication and lack of activity would lead to |
| progress from childhood to preadolescence. As a | | | | excessive weight gain. Rather than leading a |
| juvenile disorder, it affects children younger than 16 | | | | sedentary lifestyle, you could encourage your child to |
| years of age, although there are cases wherein it | | | | engage in non-strenuous play and sports activities |
| persists beyond the teens. | | | | which exercise the joints, bones, and muscles. |
| What is Systemic JRA? | | | | As part of pain management care, a child with |
| Think of it as an autoimmune disorder wherein the | | | | systemic JRA is attended to by a pediatric |
| immune system which normally responds beneficially | | | | rheumatologist. Aside from pain relievers, the usual |
| to fight any infection automatically reacts to combat its | | | | medications would include NSAIDs and low-dose |
| own defenses. Even a minor infection which raises the | | | | steroid treatment. The patient may also need |
| white blood cell count could trigger the autoimmune | | | | specifically-prescribed exercise programs and rehab |
| system of to attack its own body tissues. | | | | sessions under the supervision of a physical therapist |
| Poorly understood, systemic JRA is difficult to | | | | to completely recover. |
| diagnose and treat without a series of tests to rule out | | | | How do you deal with it? |
| all other diseases. It can be worrisome because some | | | | When chronic joint pain is recurrent, it goes far beyond |
| of its symptoms closely resemble those of leukemia, | | | | what we know of as musculoskeletal pain. The pain is |
| bone cancer, and other nervous syndromes. | | | | simply indescribable. It could affect the entire body |
| How does it show? | | | | starting from the ankles to the knees, higher to the hips |
| Depending on its severity, the disease is characterized | | | | and the shoulders, and even up to the neck and jaws. |
| by multiple signs and symptoms such as joint pain, | | | | As parents of a child with systemic JRA, we only |
| swelling, and stiffness for more than six weeks | | | | have to deal with it. However, it is our children afflicted |
| straight. The child experiences prolonged bouts of high | | | | with the disease who have to live with it. They will |
| fever and chills which peaks with unexplained | | | | have to cope with its long-term side-effects such as |
| measles-like rashes. The experience can be very | | | | growth delays, accelerated tooth decays and inner |
| disheartening and debilitating, which is why pain | | | | eye inflammations which lead to premature scarring |
| management should be given importance in systemic | | | | and vision problems. With prolonged medication, |
| JRA. | | | | complications of the heart and liver as well as stomach |
| It is not contagious, because it is neither bacterial nor | | | | ulcers are bound to happen. |
| viral but rather a disease of the immune system. It can | | | | Aside from our love and patience, we can only lend |
| be inherited as a third-generation disease, meaning it | | | | our children additional support through pain |
| skips one generation and manifests itself in the next. | | | | management medications, clinics, and therapies. |
| There is no clear explanation why some children | | | | Keeping informed and updated on current |
| outgrow it completely while others have long | | | | developments in patient care for systemic JRA would |
| symptom-free periods followed by a sudden show of | | | | help families deal and live with a disease which goes |
| flare-ups. | | | | beyond the pains of growing up. Turn to our Fitness |
| How do you manage it? | | | | Books for more information on pain management and |
| During JRA flare-ups, a child is prone to lose weight | | | | other health matters. |